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Beth Johnson Foundation Group, Stoke-on-Trent

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Beth Johnson Foundation Group, Stoke-on-Trent

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The Beth Johnson Foundation Group ensures that the voices of people who have a diagnosis of dementia are actively heard in order to influence all aspects of dementia-related work. The group, based in Stoke-on-Trent, aims to influence professionals from a grassroots perspective by raising further awareness about living positively with a dementia.

Beth Johnson Foundation Group members support each other through sharing experiences of how they are living with dementia in a meaningful manner.

The Beth Johnson Foundation Group hopes to be able to continue meeting and are inviting new members who are living with a dementia to join.

We meet monthly and welcome people with dementia living in Stoke on Trent and North Staffordshire.

You can find out more about us by following our blog:  https://dementiaadvocacy.wordpress.com.

There’s No Bus Map for Dementia was created through a collaborative, patient-led approach. Artists and people living with dementia (from Beth Johnson Foundation) worked together in a series of arts workshops to find ways to represent and share the experience of living well with dementia.

There is an accompanying guide to using There’s No Bus Map for Dementia for health and social care practitioners. The project was funded by Arts Council England.

Story: Cathy Leamy and Sarah McNicol

Illustration: Cathy Leamy

Thank you to Rita, Sue, Maq, John, Michael, Gordon, Fred, Shelagh, and Dave for their insight and to Betty, Jane, and Jessica for their workshop help.

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Please see the bookmark ‘Dementia is more than memory loss’ created by the group. Bookmark 1 proof

More details about the bookmark can be seen in Sept/Oct Newsletter 9583a_DEEP – Newsletter Sep-Oct 2019_AW

You can also see members of the group taking part in DEEP moments films (released June 2020) here: https://www.dementiavoices.org.uk/deepmoments/

Update from Beth Johnson Foundation, Betty Machin:

“The Beth Johnson Foundation peer support group continue to meet via Zoom every Friday. The good news for us one of the three members who could not previously join via Zoom is now able.

Members continue to write letter to other members. Members have also started to telephone each other. The response has been fantastic those receiving calls saying how much they value the calls and those doing the calls saying how much pleasure they are getting from doing the phone calls. Members say they feel they valued and wished they had done at the start of COVID -19.

We are planning our first face to face meeting hopefully in the near future.” – August 2020

BETH JOHNSON FOUNDATION GROUP, STOKE-ON-TRENT

Betty Machin 01782 844 036
Betty.machin@bjf.org.uk
www.bjf.org.uk