Paul talks about his passion for using music to explore and explain dementia.
This is a song about Dementia, and always being the same person you always were, and always will be, through all the tribulations of dementia.
In Sefton Park, reminiscing with old friends and carers, and the sadness of friends lost to this disease. The beauty of the Park and Palm House is a place the people of Liverpool go to for peace and quiet.
The invisible cloak of Dementia hangs over us like a shroud. People talk over our heads and think we can’t answer, people hide from us because they don’t know what to say any more, the stigma haunts us. So we become social pariahs.
Paul reflects on the challenges of living with dementia.
Ron talks about how and why he creates his Dementia Diaries “with music in the mix”. He uses them to express his feelings, often of depression and sadness. He feels that the music camouflages his voice and makes it less ‘aggressive’.
Ron talks about his Dementia Diary ‘The Mountains I Still Climb’. He recorded this out of frustration at the lack of support and involvement available to him in Luton, and the ‘trivialisation’ of all his aspirations.
Ron talks about his Dementia Diary ‘Did you know that people with dementia think?’ When his Mum had dementia, he didn’t understand it – he thought everyone was ‘feeble-minded and incapable.’ And this influenced his thinking when he too was diagnosed.
Ron talks about his Dementia Diary ‘Half Hidden from View’. He wrote this to express his devastation at his awful living circumstances. He also reflects on a local care home he used to visit to play music.
Ron talks about his Dementia Diary ‘Co-production’. Here he expresses frustration at not being involved fully – ‘I want ownership of my life, my existence!’